BURKE FAHN MARSDEN DYSTONIA RATING SCALE PDF

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Laurent Vercueil Movement Disorders Vol. Results: stimulation for generalized, idiopathic dystonia recently re- The intra-rater reliability at inclusion was better for the blinded ported a marked improvement in dystonia which was assessed rater than for the clinical raters. Pur- 3, month 6, and month Conclusion: Blinding rather than pose: To evaluate the concordance between three unblinded video is probably the key factor in better intra-rater reliability clinical raters and one single-blinded rater for 10 prospective and can produce more accurate rating than clinical rating.

Methods: Ten assessments on the BFM scale cally in multicenter studies. As inter-rater reliability is good in were performed under various stimulation conditions at differ- trained unblinded raters, the BFM scale may also be used in the ent time points before surgery and 1, 3, 6, and 12 months follow up of dystonic patients in movement disorders centers, in afterwards.

All assessments were video- Key words: dystonia; deep bain stimulation; globus palli- taped and sent to a blinded rater. Intra- and inter-rater reliability dus; Burke-Fahn-Marsden scale. In recent years, deep brain stimulation DBS of the tive treatment for medically refractory dystonia patients. Further- Lille Cedex, France. E-mail: p-krystkowiak chru-lille. DOI: The score rating scales for dystonia.

Furthermore, use of the BFM 4 severe dystonia. The provoking factor rating is used scale as a multicenter instrument has never been assessed to evaluate the situations under which dystonia occurs: it prospectively. Since the surgical approach for treating ranges from 0 no dystonia to 4 dystonia at rest. The dystonia often requires multicenter studies with multiple scores for the eyes, mouth and neck are each multiplied investigators, a measure of the reliability of the dystonia by 0.

Moreover, as most of the studies published to weighting factors. Patients were examined and video- date have been open-label studies, the assessment should taped according to the standardized protocol described be compared to those with a single, blinded investigator.

This assessment was the median time since disease onset was The study was after surgery. All four raters were movement disorders approved by the Investigational Review Board at the specialists with expertise in the evaluation of dystonia. The raters were trained using the same training video- All subjects gave their written, informed consent. Pa- tapes, written guidelines, and verbal instruction. Mean SD Min.

Inclusion evaluation 1 Postoperative evaluations: 1 month 2 conditions with different stimulation contacts [a and b] ; 3 months a on neurostimulation and b 10 hours after the stimulation was turned off; 6 months 3 randomized conditions, each with a different pulse width [a, b, or c], on 3 consecutive days and 12 months on stimulation.

Statistical side raters. Descriptive Analysis Our analysis took into account the assessment time points and conditions. ICCs exceeding 0. Intra- per-item reliability i. Postoperative evaluations: 1 month 2 conditions with different stimulation contacts [a and b] ; 3 months a on neurostimulation and b 10 hours after the stimulation was turned off; 6 months 3 randomized conditions, each with a different pulse width a, b, or c , on 3 consecutive days and 12 months on stimulation.

Movement Disorders, Vol. TABLE 3. Standard Error of Measurement. In contrast, the intra-rater reliability for the un- The results are summarized in Table 5.

Inter-rater blinded clinical rater using videotapes and those assess- reliability determined by comparing the blinded rater ing the patients at bedside were close ICCs 0. Thus, this per-item analysis underlines the utility of a blinded procedure and provides information Eyes 0.

Right arm 0. Over- Movement Disorders, Vol. We thank the Clinical blinded procedure. However, Krystkowiak, Marie Vidailhet. Rater 1 also used videotapes. Bilateral deep brain stimulation of the globus pallidus in primary generalized dystonia. Validity and reliability of a rating scale for the primary torsion dystonias.

Neurology ; Dystonia Study Group. Rating scales for dystonia: a multicenter assessment. Mov Disord ; In conclusion, a blinded procedure rather than video 4. Pallidotomy for gener- assessment is probably the key factor in generating alized dystonia. For each 5. An open trial of clozapine for dystonia. Intrathecal baclofen for clinical rating because of the blinded procedure.

Deep brain stimulation in the including dystonia , a blind procedure as well as treatment of severe dystonia. J Neurol ; Electrical stimulation of the cally, in as much as it reinforces the accuracy of the globus pallidus internus in patients with primary generalized dys- tonia: long-term results.

J Neurosurg ; Moreover, the use of a master tape was a useful 9. The prevalence of procedure for providing a common training foundation to tardive dystonia, tardive dyskinesia, parkinsonism and akathisia.

Schizophr Res all raters whether blinded or not and for improving the ; In those Fermanian J. Measuring agreement between 2 observers: a quan- conditions, given the good intra-rater reliability, the scale titative case. Rev Epidemiol Sante Publique ; De Vet H.

Observer reliability and agreement. In: Armitage P, could also be a useful clinical tool to follow patients with Colton T, editors. Encyclopedia of biostatistics, Vol 4.

West Sus- generalized dystonia over time.

ATRESIA DE COANAS EN PEDIATRIA PDF

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Laurent Vercueil Movement Disorders Vol. Results: stimulation for generalized, idiopathic dystonia recently re- The intra-rater reliability at inclusion was better for the blinded ported a marked improvement in dystonia which was assessed rater than for the clinical raters. Pur- 3, month 6, and month Conclusion: Blinding rather than pose: To evaluate the concordance between three unblinded video is probably the key factor in better intra-rater reliability clinical raters and one single-blinded rater for 10 prospective and can produce more accurate rating than clinical rating. Methods: Ten assessments on the BFM scale cally in multicenter studies. As inter-rater reliability is good in were performed under various stimulation conditions at differ- trained unblinded raters, the BFM scale may also be used in the ent time points before surgery and 1, 3, 6, and 12 months follow up of dystonic patients in movement disorders centers, in afterwards. All assessments were video- Key words: dystonia; deep bain stimulation; globus palli- taped and sent to a blinded rater.

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The Burke‐Fahn‐Marsden Dystonia Rating Scale is Age‐Dependent in Healthy Children

Although BFMDRS was originally developed as an instrument for the measurement of primary torsion dystonia in adults, the scale is now uniformly being applied to quantify dystonia severity in children as well. Using a significance level alpha of 0. Before decision on study inclusion, the parents of the child completed a detailed questionnaire concerning the health of their child. We recruited participants by open advertisements at regional schools.

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